He has a crisis when he stays in sunny, hot environments. Sometimes he sleeps for 20 minutes, half an hour and wakes up. His family can’t light a stove at home because little Muhammet Taha has a seizure right away. At this time, the smell of fish emanates from his body. According to his father, doctors say there is no cure for the disease. Living with the rare ‘fish scale’ disease in the Nusaybin district of Mardin, Muhammet Taha’s family, who had a difficult time, is waiting for a solution as his life turns into a nightmare.
Muhammet Taha can neither go out in the sun nor sleep regularly. His father, Ramazan Demir, also does not sleep until the morning on some nights when Muhammet Taha has crises. Muhamet Taha’s father, who also had a crisis in hot environments, said, “The teeth of the children who have this disease are sharp and they do not sweat,” and said that his child’s skin was bruised. Here is the drama of Muhammet Taha and his family, who lead a nightmare life due to his congenital illness…
SKIN LOOKS COVERED WITH FISH SCALES
Fish scale disease, as a result of the inability to remove dead skin cells in the body, accumulates on the skin, forming a thickened and dry layer, and it gets this name because it makes the skin look like fish scales. In times of crisis, the disease that causes odor to spread from the body is rare. Muhammet Taha, who has this disease from birth, has a crisis when he stays in sunny and hot environments.
FATHER SLEEPLESS TILL MORNING
Expressing that his son never sleeps at night because he has so many crises, father Ramazan Demir noted that he sometimes does not sleep from 24.00 at night until 07.00 in the morning when he has seizures.
“SLEEP FOR 20 MINUTES, CAN’T GO TO THE SUN”
Father Demir said:
“Due to the illness, he sometimes sleeps for 20 minutes or half an hour, and then wakes up again. He is born with it, no matter how hard we try, there is no cure for this disease. When we turn on the stove at home, he cannot stop, he immediately has a seizure. Although it is cold, we keep the windows open, he cannot go out in the sun. Their teeth are sharp. Children with this disease have sharp teeth.”
“FISH SMELL IS ELEVATION FROM THEIR BODY WHEN THE PAIN AND INFLAMMATION INCREASED”
Stating that the child’s skin is always in the wound and inflamed in every part of it, Demir said, “According to the doctors, it is an incurable disease. When the pain or inflammation increases, the fishy smell spreads out of his body.”
